"Data is a complex issue," he said
Rainey said he and his wife understand data just fine -- they analyzed other hospitals' mortality rates when deciding where to send Waylon after the cardiologist suggested he be moved out of Kentucky Children's.
Jaxon and Waylon are both at home now, and their parents are very pleased with the outpatient care from cardiologists at the University of Kentucky. But they said they'll continue to fight to have all safety data released to the public.
"We've not lost our child, and I thank God for that, but I'm standing up for the ones that have lost their kids -- the moms that I've had to stand in the hallway with and try to console because they've lost their children," Tabitha Rainey said. "And they don't know what's happened and there are still no answers given to them."